TOMORROW IS IT!!!

I can't believe the disc golf tournament is already here!!! TOMORROW AT NORTHSIDE CHRISTIAN CHURCH! $10 FOR SINGLE PLAYERS AND $15 FOR DOUBLES! Please join us and bring your friends and family! It's gonna be a great day! Games, food, a raffle!!!

Registration starts at 11 a.m.

DALLAS INFO

So we're back from Dallas. After looking at Hannah's MRI, we were told that her case is so severe that the ONLY option is a full hip replacement. We were hoping that there were going to be a few more options. Scottish Rite told us that they don't do replacements either so now our job is going to be to find someone, in Houston preferably, that is willing to do a hip replacement on a 16 year old. It has been very discouraging. My next worry is that we wont be able to find a doctor that takes CHiP insurance. One step at a time right?

On a more positive note, we went to TCU in Fort Worth to do a tour and get info for Hannah. It was GORGEOUS! She said she felt at "home" and I really could see her living there...broke my heart and made me so proud and happy at the same time! I will post a few pictures later...

HOPE TO SEE YOU ALL AT THE DISC GOLF TOURNAMENT ON SATURDAY! SCROLL DOWN FOR THE IMPORTANT DETAILS~

Today SUCCESS...countdown? 5 days!

So today I did some door to door with the help of my friends Gwendolyn and Mary (and my Hollee) and got some commitments for some gift cards and baskets etc to donate as prizes for the disc golf tourney...AND we have an autographed ASTROS Baseball!!!! So come out and play....also as we get closer to the tournament we don't have as many people as we would like so we are offering a DISCOUNTED price on registration! $10 for a single player OR $15 to play as pairs!!! SIGN UP the day of tournament with no extra penalties!!!

COME SEE US AND SUPPORT HANNAH'S RECOVERY <3

ALL donations can be mailed to:

HANNAH McGEE

4625 FM 2920 box #159

Spring Tx 77388

THANK YOU <3

ps.

Don't forget to leave Hannah some love & words of encouragement here <3 THANK YOU

Good Night~

Friday Night @ Dirty Bay Beer Co. was a GREAT night! We didn't have a real big turn out but it was still FANTASTIC! Got to see some wonderful friends and had a pretty good amount of donations! It will cover our trip for June 18th! So excited for Hannah to finally get another MRI and a date for surgery! This has just been a long road and we are all ready to start the road to recovery. THANK YOU SO VERY MUCH TO MY FRIENDS @ DIRTY BAY, CHRISTEN SAWYER AND HER BAND WHO GRACIOUSLY DONATED THEIR TIPS FOR THE EVENING & TO ALL OF OUR FRIENDS WHO BRAVED THE RAIN TO COME SUPPORT THE MOST AMAZING DAUGHTER A MOM COULD ASK FOR!!! <3

The next benefit is gonna be the BIG one! We really need all the help we can get because it will be for the trip for surgery!

HANNAH'S TOUR DISC GOLF TOURNAMENT

JUNE 23RD @ 12:NOON

NORTHSIDE CHRISTIAN CHURCH

FOOD, DRINKS, GAMES, CRAFTS, PRIZES

PLEASE REGISTER BEFORE JUNE 20TH

SEND:

NAME:_______________________________________

PHONE:_______________________________________

EMAIL:___________________________________________

$20 FOR SINGLE PLAYER; $35 FOR PAIRS TO:

HANNAH MCGEE

4625 FM 2920 BOX #159

SPRING TX 77388

What a Good Daddy!~

Travis came home today with signs made for the back of both of our cars! They have the disc-golf tourney info on the as well as this website! TOO COOL :)
So here's a quick run down of what's coming up this month...

JUNE 8 = DIRTY BAY BEER CO. benefit in Baytown; free admission; great music; starts at 7:00pm! Various ways to donate <3

JUNE 17 = We ;eave for Dallas for the MRI & surgeon consult

JUNE 23 = DISC GOLF TOURNAMENT @ Northside Christian Church starts at 12:noon! ALL PROCEEDS GO TOWARDS HANNAH'S ROAD TO RECOVERY!

Scroll down to copy and paste the registration form! Mail it in before June 20th

THIS FRIDAY JUNE 8th

DIRTY BAY BEER COMPANY IN BAYTOWN IS HOLDING A BENEFIT FOR HANNAH <3

Set in Stone

OK...well today was better than yesterday! We have some things finally set in stone so that we can get started!

BENEFIT FOR HANNAH
DISC-GOLF TOURNAMENT
BAKE/CRAFT SALE
FOOD AND PRIZES
JUNE 23rd @ NORTHSIDE CHRISTIAN CHURCH STARTS AT 12:00 NOON
Please copy and print the registration form below:

                       BENEFIT   FOR   HANNAH

                                                Disc-Golf Tournament Registration Form

$20 CASH or MONEY ORDER ONLY

June 23, 2012

12:00 NOON

@

NORTHSIDE CHRISTIAN CHURCH

games, crafts, baked goods & food for sale

Form and payment can be mailed to:

Hannah McGee

4625 FM 2920 Box #159

Spring Tx 77388

NAME: _____________________________________________

PHONE #: __________________________________________

EMAIL ADDRESS: ____________________________________

Please mail in registration no later than June 20th

late registration day of tournament is $25

Heartache :/

I'm just feeling really discouraged this morning. I could tell Hannah was hurting last night. She had a good weekend at the Ranch but it's a long ride there and back. Then I went over the weekend to check the PO Box that we got and it was still empty...I am grateful for the people that have helped out as much as they could but I am feeling like we aren't going to be able to make these things happen. EVERY penny helps. I have only had about 7 people say that they could help with a bake/craft/garage sell, so we are possibly going to have to push that back. I hate asking for help. And I'm just really tired.....
Stay tuned; I know God has a plan~
Rhonda

Just to put Hannah's story at the top of the blog again for those of you reading it for the first time...and THANK YOU SO MUCH!

When Hannah was about 11 years old she started complaining to her Dad and I about pain in her right hip. At first it wasn't constant, so we chalked it up to growing pains and gave her some ibuprofen and sent her to bed. After this went on for about 6 months and started to become more painful we decided to have x-rays done. The x-rays showed abnormalities and the doctor ordered an MRI. At this time we had no medical insurance so an MRI was out of the question. We went back and forth trying different doctors, struggling with paying the majority of our paychecks to have insurance and fighting Medicaid/CHiP. It's really one thing to have your little babies sick and them not be able to verbalize their pain...when your "big" babies can tell you exactly what is wrong and how much it hurts, it tugs at completely different heart strings! Travis's
 mom helped us pay for an MRI and we got 2 different diagnosis---Avascular Neucrosis or Leg Calves Perthesis Disease. Honestly they are basically the same thing but if it is A.V. it developed over time and if it is L.C.P.D. she was born with it. What all that means is that the ball of her femur has NO circulation to it and the bone is dead. This has over the years deteriorated and has been shoved up into her pelvis through being an active child. Active meaning that she played soccer, danced, ran, jumped, and played until it was so bad that her leg is at this point 1.5" shorter than her left leg. She has literally sat in my lap and cried and there has been nothing I could do for her.   :' (   The doctors wanted to put her on pain killers until she was done growing and surgery turned into an option. Since I am a drug and alcohol therapist that was NOT an option for me. To me they were handing her an addiction! We have kept pain meds on hand in case of really horrible pain, but we always try to handle it with ibuprofen and ice packs as well as some accupuncuture and chiropractic treatments.

ANY donations can be mailed to :
Hannah McGee
4625 FM 2920 Box #159
Spring Tx 77388

THANK YOU AGAIN  & GOD BLESS

Well this morning I went to Old Town Spring, HEB, and Walmart and passed out some of the flyers about Hannah. I hope people didn't think I was crazy and weird. We are getting closer and closer to our June 18th trip and we are in desperate need of donations. This is much harder than I thought it was going to be. I'm sure that if it were easy there are those people that would try and raise money just so they didn't have to work...I'm a hard working Mom who just wants to take care of her daughter...If you are reading this blog and there is ANYTHING that you can do to help Hannah, please send donations to...
Hannah McGee
4625 FM 2920 Box # 159
Spring Tx 77388

Lots to report and update. Hannah is doing ok...she describes a good day as "her normal".
JUNE 9, 2012 = Bake/Craft Sale ... details as to where coming very soon!
JUNE 23, 2012 = Disc Golf Tournament @ Northside Christian Church. Registration details to follow soon!
Again, Thank you for all of your support!
Rhonda & Hannah

LOTS O STUFF GOING ON! So our next appointment is June 18th in Dallas at Scottish
Rite. Up until then we will try to raise money so that we can get there...we have a post office box set up for ANY donations:
Hannah McGee
4625 FM 2920 #159
Spring Tx 77388

We will also have a benefit concert in July. You can check in here for details or go to Hannahs Story (Hannah McGee) on FACEBOOK.
Thank you All for EVERYTHING <3

i love yo guys so much.

i just wanna go through,& individually thank some people for being here for me lately.
MOM: i know this has been quite hard for you, sitting here,& watching me in pain, & such. but thank you for always being here for me, even when i didn't want you to be, you refused,& stuck by my side.
ANNIE: you have been here for me through everything,& i wouldn't have made it this far with your constant advice, & understanding.<3
MARY: thank you so much, for tagging along with me to appointments,& such. & thank you for involving your sweet family to help me with these things.
RENEE: wow, not only are you my lovely boyfriend's mom, but you act as my mom as well, & including my nurse. you have been so helpful throughout this process. & i couldn't be happier that i have you here by my side constantly.
GARRETT: babe, we have been through so much together, & boy am i glad that you stuck with me through this. on my worst days, you remind me that things are going to get better,& that you will be right by my side when that happens.
LINDSEY: i know we have only spoken on occasion, once. but our emails help me know that there is one more person out there that cares,& understands.

AGAIN, THANK YOU GUYS SO MUCH FOR BEING HERE FOR ME. I LOVE YOU ALL, WITH ALL MY HEART.<3

~HANNAH

Sooooooo...I just need to say that we LOVE MARY!!!! If it wasn't for Mary our trip to Dallas would not have been as successful! She was such a blessing to have...she took Hannah's mind off of things, comforted her and made us ALL laugh. Her AND her family have turned out to be exactly what we needed in our lives for many reasons! THANK YOU MARY....

and NOW you have been BLOGGED! <3

Long Time...No Blog

Today is April 23rd which means we went to Scottish Rite last week. Not too much happened except that we had a GREAT road trip and a little new information. Hannah has some good cartilidge in her hip which can be fixed. The bone on the other hand is basically ruined. We scheduled another appointment for June 18th where the doctor will do an MRI and then we will consult with the Chief of Staff of the Leg-Perthes Clinic as well as the surgeon who will do her surgery. She will have to have more than one surgery. One that will be exploritory and then depending on what they find at that time, another to "repair". So for right now we are still dealing with waiting and pain but Hannah is a strong young woman...the strongest I know. Keep praying for her! I will keep you all posted. New pictures to come from our road trip too! <3

Day 16

Well this past Monday was one of the worst nights that we have had. Or maybe it was Sunday...it all kind of runs together sometimes. Hannah went to the races with her best friend and it was an all day event. She was careful but I think even being careful has its consequences. I could tell that she was sore but as she was sitting at the dinner table eating a late dinner, she texted me that she needed help. (I was only in the living room) I went in to help her and she couldn't even stand up. After some deep breathes she let me wrap my arms around her and pull her up. She fell into my chest and sobbed. She told me that she was just tired of feeling this way and relying on others to help her do simple tasks. I let her cry and reminded her how very much I love her and that we WILL get through this together. I also explained to her that "together" didn't just mean me & her or even our family of 4...but ALL the people that love and care about her. I can say with complete honesty that she is the stroungest, bravest, most wonderful young woman that I know. I really do love her with all my being and am looking forward to our visit to Dallas & Scottish Rite in April. Keep the prayers and comments coming!!! Love Rhonda & Hannah <3

PLEASE FEEL FREE TO LEAVE HANNAH SOME WORDS OF ENCOURAGEMENT OR BIBLE VERSES OR JUST SHOW HER SOME LOVE! <3
THANK YOU

Day 11-ish

No news is good news, right? I think that's how the saying goes anyway.
Ya' know one thing that has been really difficult on me as well as Hannah is trying to adjust what her priorities are. When all of this started she was a Dancer, and a Soccer player, and wanted to try out for Volleyball...and she loved to Run and a form of emotional outlet. She is a very typical teenager...she wants to roam the walkways of the mall with her friends. She wants to run around in the sunshine as Spring slowly starts to approach...but I have to tell her "No". Sometimes I give in just so she doesn't lose all of her experiences. Yesterday I let her go to watch the races with a friend. It was an all day event which meant lots of walking. Then she headed to the mall, etc....Today she is paying the price. We've used some pain medication and some Bio-Freeze. She was in bed by 8:20. Approximately 1.5 months until Scottish Rite Hospital. I just hope she (we) can all hang in the with good spirits until then. Keep us in your prayers~
MUCH LOVE
Rhonda & Hannah

Day 6

UUGGHHHH! Today I found out that Hannah can only miss one more day of school and still be exempt from finals! Has anybody seen a study guide for a high school final lately??? CrAzY!!! You can only miss a total of 4 days for the entire year and she has missed 3. Why does this suck you might ask?!?!? Well her appointment for Scottish Rite in Dallas is on a Wednesday...a Wednesday is the only option. We were hoping for a Thursday or Friday to make it a weekend road trip and so that she could tour TCU (Texas Christian University) at the same time! That won't happen....Oh Well....first things first right?!?
Today was ok...I didn't see her much because I took Hollee to Karate. She did seem in good spirits as we watched American Idol though. Looking forward to the weekend as usual...may not Blog until then~

Much Love~
Rhonda

Day 5 (yes we skipped Day 4)

Hannah very rarely complains about pain but I can see it on her face sometimes. It breaks my heart. I would do anything to take her pain away...Today I mailed in the CHiP application and I will send the Harris Co. Hosp. District app tomorrow. We did find out other good things at Shriners the other day...I need to try and get Hannah on SSI. I hate to label her in ANY way at all but technically she has a disability and that's what things like SSI are for and DARS too. She could possibly get her college paid for. 100%...what a miracle THAT would be! She is so smart and positive that she deserves to be able to be the very best she can be. Right now we are kind of at a wait and see point. I think that's another one of the hardest parts....hurry up and wait.
I'll fill ya in soon!!!  <3 MY HANNAH <3

Day 3

Not much to report on this Saturday! Hannah is spending the day with Garrett! I love it when she smiles <3 Hope they have a GREAT day together! This Mom is headed out for a much needed Girls Night!!! Catch ya' later!!!

Day 2 (part 1)

Well it's only 9:30 in the morning but Renee & I have been on the ball already. Renee has made calls to Scottish Rite and has info and I have been on the phone with Harris County Hospital District trying to apply for a Gold Card and filling out applications for CHiP. What we get out of all of that I guess will be part 2 for later tonight. Yesterday after Hannah was told she couldn't run the way she wants to, Travis bought her an Ibanez starter acoustic guitar. She loves music so much and we decided that she needs something to focus on. She and Travis sat in the bedroom for a good hour and a half learning chords. I hope it is something that she falls in love with!
     Well...back to the paperwork for now...update later!

Day 1 (the real one)

WOW!!! What a day! We got up at 5:00am. Something pretty normal for Hannah and Travis but not so much for me...Renee made it over and we were headed downtown to Shriners. It really is a beautiful place...We were on the 5th floor and could see quite a bit of downtown! It was a gorgeous morning. Everything went quickly and everyone was so nice and considerate. At one point Travis was looking through his wallet for some change in the cafeteria and the lady that had been working the front desk brought him change. Travis & Hannah went to have her vitals done then we went back and answered tons of questions. Next it was off to x-rays. Finally a doctor and a couple of students came in to examine Hannah and look at the x-rays. To make a lot of "doctor lingo" short, the doctors decided that she has arthritis that is so advanced in that hip that she will have to have a replacement surgery. BUT Shriners does NOT do replacement surgery..... Hannah was so disappointed! We all were. We had such high hopes and expectations. The doctor also told Hannah that she is not going to be able to run a marathon like she wants to...that was the point when I think her heart broke into a billion pieces. I can't put into words how much it hurts to have to sit and watch as your child's simple dream is yanked out from under her.  It felt like we were back at square one again.
     Instead of just sending us out the door though, the people at Shriners told us EXACTLY what to do next. Who to go to and phone numbers and referrals, etc etc etc...They were fantastic! So the next few decisions and steps we will start taking tomorrow. At the same time we applied to Shriners we applied to Scottish Rite Hospital in Dallas and she was accepted there as well....so some phone calls and a trip there at the end of April!
     Life changing journey's don't happen over night, so keep praying for us and I will update often!!!
Rhonda & Hannah

Day 1 (eve)

Hey...it's me, Mom. ...or Rhonda depends on who is reading this. (We are a family of 4...Rhonda=Mom, Travis=Dad, Hannah=15 yrs old, Hollee=7 yrs old) Tonight I write as Rhonda. I wanted to start a blog for Hannah and I to keep up with everything that is gonna take place over the next year or so. So I guess there will be 2 stand points at times depending on what Hannah wants to say. Here's her story from my view:
        When Hannah was about 11 years old she started complaining to her Dad and I about pain in her right hip. At first it wasn't constant, so we chalked it up to growing pains and gave her some ibuprofen and sent her to bed. After this went on for about 6 months and started to become more painful we decided to have x-rays done. The x-rays showed abnormalities and the doctor ordered an MRI. At this time we had no medical insurance so an MRI was out of the question. We went back and forth trying different doctors, struggling with paying the majority of our paychecks to have insurance and fighting Medicaid/CHiP. It's really one thing to have your little babies sick and them not be able to verbalize their pain...when your "big" babies can tell you exactly what is wrong and how much it hurts, it tugs at completely different heart strings! Travis's
 mom helped us pay for an MRI and we got 2 different diagnosis---Avascular Neucrosis or Leg Calves Perthesis Disease. Honestly they are basically the same thing but if it is A.V. it developed over time and if it is L.C.P.D. she was born with it. What all that means is that the ball of her femur has NO circulation to it and the bone is dead. This has over the years deteriorated and has been shoved up into her pelvis through being an active child. Active meaning that she played soccer, danced, ran, jumped, and played until it was so bad that her leg is at this point 1.5" shorter than her left leg. She has literally sat in my lap and cried and there has been nothing I could do for her.   :' (   The doctors wanted to put her on pain killers until she was done growing and surgery turned into an option. Since I am a drug and alcohol therapist that was NOT an option for me. To me they were handing her an addiction! We have kept pain meds on hand in case of really horrible pain, but we always try to handle it with ibuprofen and ice packs as well as some accupuncuture and chiropractic treatments.
Tomorrow we go to Shriners Hospital to get some final answers and hopefully a PLAN!!! Our whole family is going to use this blog (including Hollee) to share our feelings and triumphs!!!! Cant wait to hear from you all either!
MUCH LOVE~
Rhonda